Showing posts with label medicine. Show all posts
Showing posts with label medicine. Show all posts

Saturday, July 8, 2017

We Won't Treat Your Pain: A Different Type of Opioid Epidemic Victim

Just to get this right out front, I feel terribly for victims of the so-called Opioid Epidemic. I don't think anyone wants to have their lives controlled by pills or needles.

I recognize that addiction exists, that it is a legitimate condition, and that every single human being experiences addiction in some way, shape, or form. People have the capacity to be addicted to everything from exercise to crystal meth to chocolate to weed to cheeseburgers to tobacco to muscle relaxants to caffeine to ... well, you get the idea. Addiction is real.

For a long time after the words "Opioid Epidemic" came to be, I rolled my eyes and was not especially sympathetic.

Part of this, of course, was being married to a violent and abusive alcoholic, which developed in me the erroneous mindset that those allowing chemicals to change who they were must be weak and pathetic people indeed.

The other part was an annoyance that people tried drugs like heroin in the first place. I mean, it wasn't like every American school child in recent memory hadn't been told the dangers of drugs. I don't know anybody younger than fifty that wasn't educated about drug abuse in schools, that wasn't fully aware that shooting heroin was a dumb idea. I wasn't aware then (because I didn't care to read too closely) that those addictions were often born as the result of prescription pain medication.

I have lost people close to me from drug overdoses. There is actually a current mini-epidemic among people I went to high school with that is just breaking my heart. I am saddened and distraught that people I know, love, and respect have lost a battle with a formidable enemy.

Anyway, does it do any good to say, "Well, they never should have started in the first place?"

And then I became a victim of the Opioid Epidemic myself, if not the traditional type, and I slowly realized that the problem is much larger than people dying of overdoses, families struggling to keep it together after the loss of their loved ones, first responders and public schools trying to figure out the situation with Narcan.

I'm guessing most people have seen this meme, right? Things are pretty out of control.


So how did I become a victim, albeit not the way you would think, of the Opioid Epidemic that has so badly shaken America?

In mid-April, I had a surgery that was supposed to be pretty straightforward. Prior to the surgery, the doctor gave me a prescription for 20 oxycodones to have at home. Filled it, put in the medicine cabinet, used it sparingly alongside ibuprofen and Tylenol when I was released from the hospital, no problem.

A couple of weeks later, I developed a complication. Went to the doctor, used the rest of the oxy while dealing with significant pain, no big deal.

I don't want to get into detail about the additional complications other than tell you that they resulted in two hospitalizations, one of which was ridiculously lengthy. While in the hospital, I was able to have oxycodone every four hours once the Dilaudid pump was removed.




Anyone I e-mailed or texted during this time, I apologize. I was largely in Lala Land.

When I was discharged for the final time (well, knock on wood it's the final time), I had prescription painkillers. I also had pain, and a limited number of prescription painkillers.

The pain, though ... unspeakable pain. Keep-you-up-all-night pain. Sleep on the couch watching Grey's Anatomy because it was too hard to concentrate on a book pain (and for anyone that knows me, I can always concentrate on a book).

I called the surgeon about the pain, and they had me come in. Not unexpected, they said. Try Tylenol, they said. (I was, at this point, already alternating Tylenol and ibuprofen around the clock). Call if it gets worse. It got worse, so I called the next day and they had me come in. Not unexpected, they said. Have you tried Tylenol? Well, try alternating it with ibuprofen. Call if it gets worse. It got worse again, so I called the next day. Have you tried an ice pack? How about heat? Oh, and Tylenol should help.

I finally called my Primary Care doctor, who made a joke about all the reading he has done about me over the past few months. He's been my doctor for years, and I was very frank with him. I explained that I was in pain, horrible pain, hadn't slept in a week, and the surgeon's office did not seem to care. I was not, I told him, looking for a heavy duty prescription, but surely there must be something between Tylenol and oxycodone. He thought for a moment and said, "What did they give you in the hospital?" I told him, and he asked if it worked to control the pain.

"Well," he said, "there are a couple of in-between things I can give you, but it seems logical to me to give you what worked. I'm going to give you five oxycodones. Take it as directed, don't sell it, you know the drill. Call me if you use it all, and we'll reevaluate."

I did indeed know the drill. I needed two of those pills, by the way, then the pain was manageable with ibuprofen and Tylenol.

There were further complications, of course, but my new surgeon (because I was totally all done with the other guy) actually gave me prescription pain medication when she did a procedure. Not a lot, but the same message as my PCP--we will evaluate if you use it all. I needed it for a few days, then I was fine with ibuprofen and Tylenol.

I'm not getting into detail about what was going on, but suffice it to say that my pain wasn't in question, even by the yahoo that told me to use an ice pack. Bloodwork and CT scans supported the fact that I was in excruciating pain. This wasn't me going in and asking for pain medicine with no documentation of obvious pain. It was "Tough it out because we do  not want to be seen as contributing to the Opiate Epidemic".

I'm not saying that doctors were a little loose with the narcotics for many years, by the way. Far from it.

Ten years or so ago, I experienced recurrent pancreatitis because my liver was messed up. Pancreatitis, by the way, makes childbirth seem like a paper cut. This went on for years as they tried to fix the liver damage, and I had a standing prescription for both Percocet and Vicodin. I would call the doctor, say which I needed more of, and they'd call it in. I mean, it was ridiculously easy to get narcotics, and I know that many, many people developed opiate addictions as a result of a situation like this.

I am lucky; I do not have a propensity for opiate addiction, I guess. I've struggled with other addictions over the years--caffeine, cheeseburgers, tobacco, probably even alcohol at certain times in my life. However, opioid narcotics have never been something I've used other than for short-term pain relief.

So here is my issue with the Opioid Epidemic ...

Yes, the ease with which doctors doled out narcotics unquestionably led people to become addicts and, when the prescription pad was put away, those people turned to heroin. Doctors were irresponsible. This is a tragedy, no two ways about it. I know people that have experienced this. I know people that have died from this.

That being said, it is equally irresponsible for doctors to allow patients to suffer terrible pain, which has been happening since new regulations came with the term "Opioid Epidemic" in 2015.

I have huge respect for my PCP and my new surgeon, who have the courage to balance the dangers of opiates with the need for them. Their mindset of giving small quantities of opiates when medically indicated while being incredibly responsible in overseeing the usage of said medications seems like how it should be.

For over a week, when I was crying in pain non-stop, when I was humiliated by a doctor's office telling me to take Tylenol and use a heating pad when I'd already told them I was doing all these things, when I did not sleep and was grouchy to my family and friends, I was a victim of the Opioid Epidemic.

Doctors refused to provide the necessary help because they were afraid ... but I will tell you that pain, true and unspeakable pain, is something people should not have to experience if there is a way around it. I said to myself more than once, usually at two in the morning when I hadn't slept for an increasing number of nights, "I understand why Kurt Cobain wanted to kill himself over his chronic stomach pain ... and also how he became a heroin addict."

There is no earthly reason for someone to try to exist in the pain I was in, especially long-term. A week may not seem long-term, but when you are the person living with the pain, it is a cruel reality that cannot be put into words.

The Opioid Epidemic is generally understood as having victims that are killed by addiction. This is true, and it is terrible.

But there are other victims, too. 

Saturday, April 17, 2010

A "Cosmetic" Procedure?


It's fairly common knowledge that I'm among the least appearance-obsessed people around. I mean, I'm hygienic, natch, and I can and do dress up (and do my hair and all that crap) if I have to, but I'm a lot more comfortable teaching in sneakers or clogs than in Jimmy Choos, you know?

So I got a stye in my left eye in late December. For those of you that don't know, a stye is defined as, "Inflammation of one or more sebaceous glands of an eyelid." If you're really interested in the inner workings of a stye, check out WebMD's take on the subject.

There isn't a great deal of photographic evidence of the horrible thing, but you can sort of see it here in this picture (it's the ugly red bump on the lower lid of my left eye):


Anyway, I've been going to the stye specialist (yes, they do in fact exist ... what a creepy job, though) for months now, and it was a pretty frustratrating experience. First he said, "Use warm compresses every four hours." I'd already been doing that. "I'll give you an antibiotic cream." My primary care doctor had already given me the one he was going to prescribe. "Okay, here's the most aggressive treatment: oral antiobiotics twice a day, antibiotic eye drop #1 four times a day, antibiotic eye drop #2 twice a day, and antibiotic eye drop #3 once a day. And warm compresses four times a day." I said that was fine, let's just get rid of this freaking thing so I can not look stupid and wear my contacts again and so on. Plus, styes hurt.

Anyway, I went back and saw him twice after that at two to three week intervals to point out that "the most aggressive treatment" wasn't doing jack. He said I needed to give it time. I don't know, maybe I'm impatient, but four months seems like a lot of time to me.

I reached the end of my rope yesterday, and I think the doctor realized it. He finally just removed the damn thing:


I share this story with you (and I'm leaving out the gory details, believe me ... let's just say that lidocaine doesn't work well for me ...) not because I got to look like a pirate or because I think that having a stye removed is exciting in the least. It's not even to prove that point that many doctors are really arrogant--I mean, I actually LIKED the doctor yesterday, mostly because he actually DID something about the problem but also because he was wearing a Red Sox tie, which made him seem more like a person than a robot.

No, what got me steaming mad was this stupid eye technician who said to me, "You do realize this is just a cosmetic procedure, right? It's like having plastic surgery?"

Oh! My! God! I was STEAMING!!!!!!!!!!! How is having a freaking BACTERIAL INFECTION that has been "treated aggressively" for FOUR MONTHS at all akin to, like, Heidi Montag?

At what point does something become a "cosmetic procedure"? Does stye removal fall under that category? Botox (which I've never done because, as previously stated, I am one of the least appearance-obsessed people in existence)? Where does "medically necessary" become "elective"?

Monday, September 21, 2009

Lumping Along

I've gone back and forth about whether or not to share the latest drama in my life here. Since it's occupying much of my thinking, I feel obligated to based on the thought-focused nature (well, hopefully :)) of this blog. Also, it's going to end up being nothing, so I guess my philosophical mindset is on the anxiety so easily brought out by the medical profession.
So I have a lump.

It's funny, I finally start doing breast self-exams after going to a new primary care doctor, and I notice a change--a LUMP--after three months. I kind of ignored it for a month (my good friend the internet said that often these things are hormonal and related to the menstrual cycle) but, when it didn't change at all yet remained a presence, I decided to call the doctor.

Honestly, I was expecting to go in and have the doctor say, "What lump? You have a very vivid imagination, lady. You're freaking paranoid." Instead, she very nicely requested that I not tell her where I felt it so she could feel for herself and find it--or not find it--of her own volition.

She found it. Like, right away. She did say that it was more than likely just a cyst and not anything to be super-concerned about (the c word was conspicuously absent in our conversation). That said, however, she ordered an ultrasound "just to be on the safe side".

Funny story there, actually. I called the breast experts (Mammologists? Boobographers?) To set up the ultrasound, and they said I needed to have a mammogram as well. I tried to explain that the doctor said just an ultrasound, but what I got in response was, "When women over thirty are referred with a lump, we do a mammogram too." So I guess fifty cent coffee from Dunkin' Donuts isn't too far in the future ;-)

Anyway, the ultrasound (and mammogram, because I'm evidently freaking old) is scheduled for next week. I'm doing okay, actually--kind of a nervous wreck, but nowhere near as bad as I thought I'd be. Of course, the week is still young ;)

I guess what I'm mostly thinking about are the what-ifs. What if it is something awful? What would happen to my girls? What would life be like without boobs (I'm kind of attached to them, haha)? I am, of course, extremely lucky because everyone keeps stressing that this is all precautionary (my pancreas and I have heard that before, though, so I guess maybe that's part of what concerns me).

There are people that have to go through this when the future looks immediately bleak. That's not me right now, and is it okay that I am so selfishly, buoyantly grateful for that?

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